Please see first the National Cancer Institute link shown directly below. It provides important guidelines on evaluating website information and offers excellent links to other cancer-related sites .
National Cancer Institute
How To Evaluate Health Information on the Internet: Questions and Answers http://cis.nci.nih.gov/fact/2_10.htm
Alliance for Lung Cancer Advocacy & Support
800-298-2436 Dedicated solely to helping people at risk for and living with lung cancer. Programs include psychosocial support services, education, early detection, treatments, as well as advocacy issues. www.alcase.org
American Brain Tumor Association 800-866-2282
Offers free publications, educational programs, social service consultations by telephone, a mentorship program, support group lists, a resource list of physicians, a pen pal program and funds research. It has an excellent online publication called A Primer of Brain Tumors. It may take a while to download, but the information and the graphics are excellent. This site also has a brain tumor glossary, news, events and research plus a kids’ section. The site has an extensive list of web sites and a list of support resources, including chat rooms and bulletin boards. However, please note their disclaimer and use these resources with caution. The ABTA has a booklet about brain tumors in Spanish. www.abta.org
American Cancer Society
This site has valuable information about cancer prevention, risk factors, treatment methods, and cancer detection guidelines. www.cancer.org
AMC Cancer Information and Counseling Line 800-525-3777
Provides free professional telephone counseling, cancer information and referrals. Monday through Friday, 9-5 Mountain time. Established 1981.
People Living with Cancer Website
ASCO’s consumer website, designed to help patients and their families find accurate, timely, and oncologist-approved information about cancer. In the Live Chat Room you may ask your questions in advance. www.plwc.org
Angel Flight America 800-446-1231 (flight info) 877-621-7177 (volunteer)
Flies patients and family members for free to get treatment. Patients must be in financial need, medically stable and ambulatory. www.angelflightamerica.org
Avon Breast Cancer Crusade
www.avoncompany.com/women/avoncrusade
Bloch Cancer Hotline 800-433-0464
A program of the R.A. Bloch Cancer Foundation, providing people with cancer and their families a toll-free hotline; contact with a survivor of your type of cancer, free copies of the books Fighting Cancer, Cancer…There’s Hope, and Guide for Cancer Supporters. www.blochcancer.org
Blood & Marrow Transplant Information Network 888-597-7674
Publishes a newsletter, a 228-page book describing BMTs and a 208-page book about autologous stem cell transplants. Also links transplant patients with survivors, maintains a directory of transplant centers and helps with insurance problems. www.bmtinfonet.org
Brain Tumor Society
Provides individualized patient/family information, publishes educational materials, sponsors professional and patient conferences. www.tbts.org
Brave Kids
This site offers help for kids with chronic, life threatening illnesses or disabilities. It is geared toward parents, children and siblings. They have a search engine for resources, web sites, books, videos, camps, etc. They have an online support community for adults, but it is not constantly moderated, so please use caution. It has a sub site called Club Brave Kids, for kids with special needs and their siblings. Kids can also talk and share their feelings online. www.bravekids.org
Breast Cancer Information
A non-profit organization providing reliable, complete and up-to-date information about breast cancer.
www.breastcancerinfo.com
www.breastcancer.org
Breast Health Information www.imaginis.com
Breast Cancer www.sharecancersuppport.org
Cancer Care 800-813-HOPE
Provides free professional counseling, support groups, restricted financial assistance, education and referrals to cancer patients and their loved ones. Services provided face-to-face, by telephone, and online. www.cancercare.org
Cancer Consultants
Cancer Consultants is dedicated to providing the most up to date cancer information on the treatment and prevention of cancer for patients and professionals. www.cancerconsultants.com
Cancer Hope Network 877-HOPENET
Offers free one-on-one support to cancer patients undergoing cancer treatment and their families using trained volunteers who have survived cancer. www.cancerhopenetwork.org
Cancersource.com
This site has a wealth of information and support about cancer. It is categorized by audience and clearly specifies different levels of information. In addition to cancer information, it has on-line mailing lists, message boards and chats, which are moderated by health care professionals. This site has an extensive list of resources (as always, carefully evaluate links you use). www.cancersource.com
Cancersourcekids.com
Kids, teens and parents can learn about childhood cancer on this site. Parents can view a slide show about cancer. (The slide show is available in both English and Spanish). This site also has coping information, lists of camps and wish foundations, back to school information, and cancer news. In the kid’s section, check out “Oliver’s Story” (animated story about a dog whose friend has leukemia). www.cancersourcekids.com
CancerNet www.cancernet.nci.nih.gov
Cancer Supportive Care Program
This site has a wealth of information about cancer. It has many on-line learning modules about a variety of cancer issues, such as pain, fatigue, nutrition, exercise and much more. The modules discuss the issues and offer practical management suggestions. Some of the articles are available in Spanish. www.cancersupportivecare.com
Candlelighters Childhood Cancer Foundation 800-366-CCCF
Candlelighters is a childhood cancer foundation that offers support and resources to families of children and teens with cancer. They have sections for kids, teens, and siblings. They have sections about treatment, advocacy, supports and happenings. They have a list of helpful cancer books which can be purchased online. They also have links to many helpful websites. www.candlelighters.org
Cervical Cancer Coalition www.nccc-online.org.
Chemo Angels
Support for cancer patients. www.chemoangels.com
Children’s Brain Tumor Foundation (CBTF) 866-228-4673
Offers a free resource guide (in English and Spanish), the Parent-To-Parent Network, telephone support groups, newsletter, and an annual teleconference and funds research. www.cbtf.org
Colon Cancer Alliance (CCA)
An organization made up of colon and rectal cancer survivors and caregivers. Patient services include a buddy program, educational materials, clinical trial information, and current news about colorectal cancer treatment and research. www.CCAlliance.org
Conversations!
Publishes Conservations!, the international newsletter for those fighting ovarian cancer. The monthly newsletter provides hope, humor, support, and information about treatment options and coping tips. Survivor-to-fighter matching service available. 806-355-2565. www.ovarian-news.org
Coping with Cancer Magazine 615-790-2400
America’s consumer magazine for people whose lives have been touched by cancer. Provides knowledge, hope, and inspiration from cancer survivors and healthcare professionals. Now in its 18 th year of service, “Coping” provides official annual coverage of National Cancer Survivors Day. www.copingmag.com
Corporate Angel Network, Inc. (CAN) 866-328-1313
Arranges free air transportation for cancer patients and bone marrow donors to/from cancer treatment centers nationwide by using the empty seats aboard corporate aircraft traveling on routine business. There are no financial requirements or limits on the number of flights. Patients must be able to walk and travel without any life support systems. www.corpangelnetwork.org
Fertile Hope 888-994-HOPE
Provides reproductive information, support and hope to cancer survivors whose medical treatments present the risk of infertility. www.fertilehope.org
Foundation for the Children’s Oncology Group
This site offers facts about childhood cancer, current news, and childhood cancer research. Links to other reputable sites provide more information about specific types of cancer, information about advocacy, resources, and a search engine are also included. Stories about kids with cancer add a nice touch to this site. www.nccf.org
Gilda’s Club - Phone 888-GILDA-4-U, 917-305-1200
Gilda’s club is a wonderful support organization for people living with cancer. The site has a resource directory with links to many helpful web resources and an online locator to find local chapters in the United States. Many local chapters have events and support groups. Part of this site is available in Spanish. www.gildasclub.org
Grief Support Group for Teens
Call Robyn at Hospice and Palliative Care of Siouxland, 712-233-4144
Provides grief support groups for children and teens ages 5 to 18 who are grieving the recent death of a loved one or experiencing grief from a past loss.
Interactive Health Tutorials, Medline Plus
This is a section of Medline Plus, health information for consumers from the National Library of Medicine. They now have over 165 interactive health tutorials about a variety of diseases, tests, diagnostic procedures, surgeries, treatments, prevention and wellness. These tutorials use animated graphics and audio to explain the procedure or condition in easy-to-read language. www.nlm.nih.gov/medlineplus/tutorial.html
International Association of Laryngectomees (IAL) 209-472-0516
An association of over 200 larygectomee clubs. Clubs provide pre- and post-operation visits to laryngeal cancer patients and continuing support and education for laryngectomees and families.
International Cancer Alliance 800-I-CARE-61
Provides a free Cancer Therapy Review, which includes description, detection and staging, treatment, diagnostic tests and clinical trials for a specific cancer. Cancer Breakthrough reports sent quarterly. www.icare.org
International Myeloma Foundation 800-452-CURE
Dedicated to improving the quality of life of myeloma patients, while working toward prevention and a cure. Operates a Myeloma Hotline, disseminates information, hosts seminars and workshops for the patient community and medical professionals, and funds research. www.myeloma.org
Kidney Cancer Association 800-850-9132
Dedicated to finding a cure for kidney cancer, increasing funding for research, getting new drugs tried and approved and supporting patients. www.kidneycancerassociation.org
Kids Cancer Network 623-551-9330
The Web site contains a bi-monthly Funletter magazine (also in Spanish), resource center. Affection Connection appreciation certificates for medical caregivers, pen-friend program, prayer network and “your story” sharing area. www.kidscancernetwork.org
Kids Konnected 800-899-2866, 949-582-5443
Provides friendship, education, support to kids who have a parent with cancer.
www.kidskonnected.org.
Lance Armstrong Foundation 512-236-8820
Dedicated to enhancing the quality of life for people living with, through, and beyond cancer. Focuses on survivorship resources and support, survivorship programs, national advocacy initiatives, and scientific and clinical research grants. www.laf.org.
Learn About Cancer, University of Michigan
This part of the University of Michigan web site has a wealth of resources for cancer. You can choose from a list of cancer types or search in their search engine. This will lead you to related books, pamphlets, organizations, and web sites. The site also includes information about clinical trials, nutrition, coping, and a cancer answer line. www.cancer.med.umich.edu/learn/1learn.htm
Leukemia and Lymphoma Society of America 800-955-4572 (information resource center: 9 am – 6 pm ET) 914-949-5213 (general information)
Dedicated to seeking the cause and eventual cure of leukemia, lymphoma and myeloma. Programs include research funding, patient aid, peer support, family support groups, and education. www.leukemia-lymphoma.org
Liver Cancer Network www.livercancer.com
Liver Tumor Org www.livertumor.org
Living Beyond Breast Cancer (610)645-4567 www.lbbc.org
Lymphoma Research Foundation 800-500-9976
Dedicated to eradicating lymphoma and serving those touched by this disease. www.lymphoma.org
Lung Cancer Links
www.lungcancer.org
www.lungcanceronline.org
www.quitlineiowa.orgQuitline Iowa Toll free 1-866-U-CAN-TRY
Make a Child Smile
This organization offers emotional and financial support to families whose children suffer from chronic or life-threatening illnesses. Each month, new children are featured. The organization raises funds to provide financial assistance to qualifying families for help with medical expenses or other costs associated with the child’s illness. Some of the supportive poems on the site have a religious bias. www.makeachildsmile.org
Mayo Clinic: Diseases and Conditions
This section of the Mayo Clinic Health Oasis has facts, news articles and features about many different types of medical conditions. Also check out their on-line personal health planners to help you take charge of your health.
www.mayoclinic.com/findinformation/diseasesandconditions/index.cfm
Medline Plus
This is a trusted site for health information for you. A service of the National Institutes of Health. www.medlineplus.gov
Melanoma www.melanoma.com
Melanoma Education Foundation www.skincheck.com
Melanoma Patients Information Page www.mpip.org
National Bone Marrow Transplant Link 800-LINK-BMT 248-358-1886
Provides peer support to BMT patients and families and serves as a resource center for BMY patients and health professionals. Offers educational booklets and a video. www.nbmtlink.org
National Cancer Institute 800-4-cancer 800-332-8615
The National Cancer Institute web site covers cancer research, prevention and detection of cancer. You can learn about types of cancer, treatment of cancer and challenges of living with cancer. They also have a news center where you can search for recent press releases. Their Cancer Information Service can help you find the latest information on cancer in easy to understand language. They have a toll-free telephone service that provides the most recent scientific information to callers in both English and Spanish. A section of the web site is available in Spanish. www.cancer.gov
National Coalition for Cancer Survivorship (NCCS) 877-622-7937
Leads and strengthens the survivorship movement, empowers cancer survivors, and advocates for policy issues that affect cancer survivors’ quality of life. www.canceradvocacy.org.
National Hispanic Leadership Initiative on Cancer 713-798-4614
National Hospice and Palliative Care Organization 800-658-8898.
Hospice Helpline helps callers find a hospice in their area. www.nhpco.org.
National Lymphedema Network, Inc. 800-541-3259
The Network publishes a quarterly newsletter, provides referrals, presents a biennial national conference and offers educational materials for purchase. www.lymphnet.org
National Marrow Donor Program
800-MARROW-2 Facilitates unrelated blood stem cell transplants and maintains a registry of more than five million volunteer donors, offers matching services and patient services and conducts research. www.marrow.org
National Patient Travel Center 800-296-1217
Makes referrals to charitable, charitably assisted and special discounted patient medical air transport services based on an evaluation of patients’ needs. www.PatientTravel.org
Neuroblastoma Childrens Cancer Society
This site is a good resource for parents of children with neuroblastoma. The site focuses on raising money for research and increasing awareness about the disease. For actual information about the disease, the site has many links to reputable cancer associations. www.neuroblastomacancer.org
OncoLink University of Pennsylvania Cancer Center
215-349-8895 This site provides information about specific types of cancer, clinical trials, current news, emotional support, updates on cancer treatments and news about research advances.www.oncolink.upenn.edu
Ovarian Cancer Coalition (NOCC)
888-OVARIAN 561-393-0005 Raises awareness to promote early detection and education about the disease. Sponsors education seminars for healthcare providers and educational forums for the public. www.ovarian.org
Ovarian Cancer Research Fund 800-873-9569
Dedicated to advancing research by underwriting investigations to find techniques for early detection and to aid in the development of new therapies. Raises awareness through educational outreach programs, awareness projects, including videos and resource materials. www.ocrf.org
Pancreatic Cancer Action Network 877-272-6226
Works to focus national attention on the need to find the cure for pancreatic cancer by providing advocacy, awareness, education to patients and professionals. www.pancan.org
Patient Advocates for Advanced Cancer Treatments 616-453-1477
An association for both patients and physicians for diagnostic and therapeutic treatments of prostate cancer. www.paactusa.org
Candlelighters (pediatric cancer website)
www.candlelighters.org
Pediatric Brain Tumor Foundation 800-253-6530
Funds medical research grants to help find the cause and cure of childhood brain tumors. Offers support programs for families with a child with a brain tumor. Services include free literature, a newsletter and internet conference series. www.pbtfus.org
People Living with Cancer 888-651-3038
A Web site from ASCO, representing oncology professionals. Updated weekly, it provides information to help people make decisions about their healthcare. www.plwc.org
Prostate Cancer support US Too! International, Inc.
Provides publications, awareness, outreach, networking, and advocates to improve prostate cancer screening and treatment. www.ustoo.org
Ronald McDonald House 630-623-7048
Offers a refuge from the hospital, a “home-away-from-home.” www.rmhc.org
Sarcoma Alliance 415-381-7236
Provides education and support to people with sarcomas and their family, friends and caregivers. www.sarcomaalliance.org
SHARE Toll-free 866-891-2392
Self-help for women with breast or ovarian cancer. www.sharecancersupport.org
Shop Well with you
This group called Shop Well with You provides women with tips and suggestions on how to use everyday clothing to feel comfortable and confident. www.shopwellwithyou.org
Sister’s Network 713-781-0255
Sister’s Network is a national African-American breast cancer survivor’s organization. Their site has fact sheets, brochures, news, events, chapter information and cancer links. They also give statistics about African-Americans and breast cancer. This organization hopes to provide emotional support, research, advocacy and community programs for African-American breast cancer survivors. www.sistersnetworkinc.org
Skin Cancer Foundation 800-SKIN-490
This site has information about how to prevent skin cancer, early warning signs of skin cancer and types of skin cancer. The Skin Cancer Foundation supports public education, skin cancer research, and community action geared toward preventing skin cancer. www.skincancer.org
Starbright
This site has resources for kids and teen with chronic, medical and life threatening illnesses. Many of the resources are free to kids with illness. Organizations can purchase resources online. Helpful web links are also available. The site has a Family Room and online community message boards. However, always use caution when using message boards. Verify information with your healthcare professional and do not give out personal information on-line. www.starbright.org
Support for People with Oral and Head and Neck Cancer, Inc. (SPOHNC) 800-377-0928
Offers a program of support and information addressing the emotional, psychological, and humanistic needs of oral and head and neck cancer patients. www.spohnc.org
Susan G Komen Breast Cancer Foundation 1-800-462-9273
Dedicated to eradicating breast cancer as a life-threatening disease by advancing research, education, screening and treatment. Annually awards research grants and fellowships. www.komen.org
Teens Living with Cancer
Great site for teens living with cancer. They have sections on cancer facts, dealing with cancer, family and friends and chat rooms and discussion boards. Always use caution and read privacy policies when participating in chat rooms and discussion boards. The site does have on-line support groups which are facilitated by professionals; however sometimes there is a waiting list to join a group. The site also has helpful web sites. www.teenslivingwithcancer.org
TEENS Coping with Chemo
New online tool for Teens. “Coping with Chemo” is a series of “webisodes,” animated vignettes on the Internet, that use high-end graphics and animation to provide information and support to teens who will undergo chemotherapy treatment for cancer. This site talks about first diagnosis, telling your friends, side effects, when your hair comes out, making tough decisions, and celebrating your last treatment. EXCELLENT SITE!!!! www.slsb.org/chemo
Sibling Connection www.counselingstlouis.net/
Ulman Cancer Fund for Young Adults 888-393-FUND
Provides free support programs education and resources to benefit young adults, their families and friends who are affected by cancer. www.ulmanfund.org
ThyCa: Thyroid Cancer Survivors’ Association, Inc. 877-588-7904
Provides free support services, education, downloadable low-iodine cookbook, and newsletter. Holds annual conference. Outreach and materials available to everyone whose life has been touched by thyroid cancer. www.thyca.org.
United Ostomy Association 800-826-0826
A volunteer/chapter-based organization dedicated to providing education, information, support, and advocacy for people who have had or will have intestinal or urinary diversions. www.uoa.org
Vital Options International TeleSupport Cancer Network 800-477-7666
A weekly syndicated call-in talk show linking callers with other patients, long-term survivors, family members, physicians, researchers and therapists. www.vitaloptions.org.
Y-ME National Breast Cancer Organization (800) 221-2141 (24 hour English plus translators available in 150 languages,) 800-986-9505 (24 hour Spanish)
Provides peer counseling on a 24 hour hotline. Offers educational workshops, wig and prosthesis banks and support groups. Services available by community. www.y-me.org
The Wellness Community 888-793-WELL
Provides free professional programs of support, education and hope for people with cancer and their loved ones with 20 facilities nationwide. www.thewellnesscommunity.org |
